ACE Holiday Fund Raiser

ACE Team is helping our client American Superba by paying tribute to Darin McClure and donating to Stephanie Harrell’s family this year for the Holiday Season!
2011 has added some unforeseen stress for this client and ACE would like to assist in some small way to make their holiday season more joyous!
 
 
Background:
Darin McClure, President of American Superba of Dalton, Georgia, departed this life at age 45, September 26, 2011 in Barcelona, Spain of a heart attack while on a business trip. Darin was born April 24, 1966 in Dalton, Georgia, a son of the late Marvin Lee and Pearlene Southerland McClure. He is survived by his loving wife of twenty-two years, Lisa Jones McClure; son, Landon McClure; daughter, Ali McClure all of Chatsworth, GA.

 
 
 
 
 
And if that wasn’t enough one of their Key Employees Stephanie Harrell’s son Brock, age 8 was diagnosed with a rare disease *aplastic anemia (AA) and **paroxysmal nocturnal hemoglobinuria (PNH) in early September, 2011.
They are looking at many options for Brock but so far a bone marrow transplant match has not been found. You can get the backstory and keep up with Brock’s journey at www.caringbridge.org/visit/brockharrell
 
 
 
The ACE team is doing a fund raiser for the next six weeks in lieu of “Client Gift Baskets” to support the Harrell children during a very tough holiday season.
 
For every “Like” on Brock or Darins’ picture, ACE will contribute $1 towards gift certificates for the children of the Harrell family. We will up the donation once we hit 250 “Likes” to $2 per like. Please take a moment to keep these two families in your thoughts and prayers and click on the “Like” button every time you do.
 
As President of ACE, I want to thank all of you for your support throughout 2011 and wish all of you a prosperous, happy and healthy 2012!
 
Sincerely,
Susan Looby, President, ACE Microtechnology
 
*Aplastic anemia is a rare, non-contagious and often life-threatening disorder that results from the unexplained failure of the bone marrow to produce red blood cells, white blood cells and platelets. A decrease in the production of blood cells means that patients are more susceptible to bleeding, fatigue and infections.
Incidence
Aplastic anemia affects two to six people per million worldwide. The disease is more prevalent in Asia than in the Western world. Most cases occur in older adults, but a significant number of children are affected.

**Paroxysmal nocturnal hemoglobinuria (PNH), an acquired hematologic disorder characterized by intravascular hemolysis, nocturnal hemoglobinuria, thrombotic events, serious infections, and bone marrow failure, is very rare in children. PNH is caused by a somatic mutation of the phosphatidylinositol glycan (GPI) complementation class A (PIGA) gene, followed by a survival advantage of the PNH clone, which results in a deficiency of GPI-anchored proteins on hematopoietic cells. Currently, immunophenotypic GPI-linked anchor protein analysis has replaced the acid Ham and sucrose lysis test, as it provides a reliable diagnostic tool for this disease. The presence of PNH clones should be considered in every child with an acquired bone marrow failure syndrome, for example (hypoplastic) myelodysplastic syndrome and aplastic anemia, and/or unexpected serious thrombosis. Treatment of PNH in children is dependent on the clinical presentation. In cases of severe bone marrow failure, stem cell transplantation should be seriously considered as a therapeutic option even if no matched sibling donor is available. This article reviews the reported cases of PNH in children using the recently published guidelines for classification, diagnostics, and treatment.

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3 thoughts on “ACE Holiday Fund Raiser

  1. From: Crystal J. Defalco [mailto:crystal@superba.com]
    Sent: Thursday, November 10, 2011 9:42 AM
    To: Susan Looby
    Subject: Support of American Superba employees

    Susan,

    Stephanie shared your email regarding the offer to contribute to her family in honor her remarkably courageous son, Brock Harrell, as he battles this life threatening disease, as well as honoring Darin with donations to the McClure family . I must say I am overwhelmed with the support you offer our company. This is a wonderful undertaking by ACE and greatly appreciated on the corporate level as much as the personal level for both of these families. We have been faced with unexpected tragedy over the recent months and are grateful to those who have acknowledged and offered their support through prayer.

    You are taking this even further with the much appreciated financial support to these families. However, after discussing with Darin’s wife, Lisa McClure, she prefers that all monetary donations be presented to the Harrell family to support the needs of their children through this time. This is so indicative of her generous and gracious character. She offers her sincere appreciation and approves with you sharing Darin’s story and his picture as part of this wonderful display of support, but chooses not to receive any donations.

    So, please proceed and show me once again why we are fortunate to be a business partner with you.

    Kind regards,

    cjd
    Crystal J. Defalco
    American Superba, Inc.
    2850 N Dug Gap Rd SW
    Dalton, GA 30720
    phone: 706.694.2642
    fax: 706.694.8708
    crystal@superba.com

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